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Showing posts with label Symptoms. Show all posts
Showing posts with label Symptoms. Show all posts

Tuesday, 29 January 2013

The Girl in the Mirror


Things just are NOT good.  The fact I am sitting crying for no reason, well apart from remembering and feeling shit I just don’t want to.  I stood taking my nightly meds out of bag (not all of them however) and as tears filled my eyes and rolled over to spill down my cheeks I thought how easy it would be just to take them all and at first I thought just a passing thought because of shit that’s happened and the way my mind works.  Realised no Amitriptyline in bag so went upstairs to get it out of another humongous bag of unused meds the thought became a lot more prominent, pop out a couple of amitriptyline come down stairs and as I stood numb on the spot glancing at the time it was more than just a thought, it became an option and that is not good.  Just as well I’m shit at making decisions and inside am just too scared to do it.  I managed to shake the thought off, but not with the ease I would have wished. I took my meds as I should (again not all them however) and I cried some more.  The reason I don’t do it is because the love and respect I have for my partner and daughter, If I did that he would hate me, and not just the normal kind, that soul destroying kind that would take away every bit of good and just fill it with hate and a) I cannot live or die for that matter with the thought of him hating me  b) I will not be the person that destroys him like that, I love him so much and sometimes I don’t even think he realises that.  I wouldn’t do that to her either, I want her to grown up knowing how much I love her and how much I’ll fight and struggle through in this fucked up nightmare that is my life. 

Sometimes I sit for a long time just staring at the mirror, most times I don’t even realise in a world of pain going through everything I think and feel, everything I have been through. Never saying a word but talking to the only person that ever has and ever will truly understand me, my reflection, the girl in the mirror.  I cry for her and I cry for me, she sees and is the only one who can ever really see who I am and just how fucked up we both are.

But I never speak of these things or the things I can only share with her, that sad little girl in the mirror.  I look closer and I see how sunken our eyes have become and wonder why no-one ever told me. I destroy myself and her together and she cries out at me to get better, to make her pretty, to make her feel beautiful again.

I think of all the things I’ll never have said or I wouldn’t have told someone if they were gone – like my mother I’d tell that yes for a long time I did blame her for what happened to me and I know she blames herself but I was wrong because deep inside I know it wasn’t her fault and yeah things may have been different and that fact can’t change but I think maybe for a long time I needed someone to blame, I blamed myself and sometimes still do.  I blame myself for her leaving me and I know things couldn’t have been easy with an undiagnosed mental health problem, I would say however hard it was for her to hear that I wish she hadn’t told me she had left because she couldn’t handle me because in all honesty that did fuck me up a little bit more.  But in a way it has made me a more determined mum because I will never leave.

I would tell my partner that I want him to know how truly sorry I am that I betrayed him at the start of our relationship, I have no excuse, I want young, stupid, hurt and scared but I know he has never truly forgave me and I don’t think he ever will and I don’t blame him for that, there are things in our relationship he has done to hurt me and sometimes I think in a way it’s a unknown punishment for what I did.  I fucked up and we have both hurt each other but when I comes to it he is the one that has been there since I was 16, the one who has set his own life aside to care for me and our daughter when she came along, he has been the one to pick up the pieces when everything has fell apart, he has stood by me when most people would have ran a mile.  He has the hardest job in the world and not only do I love and thank him for doing it but I admire him. His strength and courage especially when he has had to push his own feelings to the side to be there for me and be strong for me when inside he has been falling apart.  We fit together, I don’t think we will ever truly understand  each other and we will always have our disagreements and be at loggerheads on certain things but when it comes down to it I truly believe we need each other, I live for him and our daughter and in a heartbeat I’d die for them.

I’d tell my dad that he is my hero, my whole world and I love him so much.  Throughout my life he is the only person that has always been there, who sometimes says the wrong thing but when I truly need him knows just what to say to make it all seem a bit better.  All I ever wanted was for him to be proud of me.  And I wish I had stuck in at school, went to college and uni and made something of myself.  Sometimes I have felt he is ashamed of me and has tried to hide who I really am, but in his own way I think partly it is to protect me and partly to protect himself.  I don’t know what I will do without him when he is gone, which everyone inevitably will be and that scares me so much.  I long for him to tell me he’s proud of me but by doing something which makes him proud.  I want him to know how immensely proud I am of him, for a lot of things but I know being a single father to two girls can’t have been easy.  I want him to know I need him and that even though I know it was not my fault I am sorry I broke his hard and took his happiness away when I told him what had been happening, I look back and tell13 year old me better words to say, but mostly I want to tell him simply Thank You, and that is for everything.

I’d tell my daughter she is my everything and I am so, so proud of her.  My little mini me with the craziest mind of her own, only her and her daddy can make me smile and happy and infuriate me so much.  She is our beautiful little genius and changed my life.  I never knew of an overwhelming love and fear for everything they do, well I kind of feel that way about her daddy to.  She makes me cry but no-one can pick me up the way her cute awesomeness can, she truly is awesome by the literal meaning, I am and always have been in awe of her, she amazes me and makes me laugh.  She keeps me going when I need to fall apart (yes need because I don’t ever want to.  I know she is going to be very successful in everything she does, I want to always be her friend, her guidance yet being a good enough mum to put my foot down even if that means she dislikes me.  She is my little miracle, the baby that made it and I am thankful every day that I was blessed with her and it hurts me that I can’t give her a sibling but I know one day she will understand.  And though I want for another baby (desperately at times) I know I am lucky and blessed to have her even if we never have any more.


To my baby angels, Hope, Sam and my 4 nameless little stars.  Nothing will ever describe the pain of losing you, the hole in my heart that died with each of you.  This will be short because there are no words that I can write that explain what I feel.  I love and miss each of you with every breath, every heartbeat.  To Sam, because you were so real, I know that sounds stupid because all of you were real, but my little Sam, my tears fall for you all too often, I seen you, I held you.  You got tore away from me again and again and I write this with the same tears and heartbreak as the day I lost you, nothing will ever heal that pain.  I remember you dancing about on that little screen exactly 3 hours before you were gone and in that moment part of me died. I worry that you will have felt pain, that it was the birth that killed you, did you take a breath?  And I know that you couldn’t have lived because I was only 16 weeks but you were fully formed, just so, so little.  I just think how happy you were dancing about on that little screen and then you were gone.
I need to stop now as I am in full blown tears, snot and all, hurting and feeling.  I wish I could sleep, I wish something could numb the pain even just for a little while and not just my physical pain from my concoction of weird and not so wonderful fucked up illnesses – but that’s a story for another day.

A friend once said a very true thing “she must dement herself with all that going on in her head” and while that is true, it’s not even the half of it.  I often think there must be a reason why all this has happened and continues to happen to me and most times my conclusion is it is some sort of punishment, I’m just trying to work out for what or which thing is punishment for each bad thing I have ever done.

Wednesday, 4 April 2012

My Diagnosis's

OK so here goes so far my illnesses/diagnosis's

Fibromyalgia
Joint hypermobility syndrome
Degenerative Spinal wear & tear / Prolapsed Disk
Colitis & 2 places on colon oozing blood (yet then My GP told me biopsy's were clear even though they seen it during colonoscopy)
Idiopathic Intracranial Hypertension (& Swollen Optic Nerves)(Causes Pressure Headaches)
Antiphospholipid Syndrome (Hughes Syndrome) (Told me this was cause of my recurrent miscarriages which I've had 4, 1 of them at 14 1/2 weeks and 1 at 16 weeks)(However blood tests now show as negative)
Migraines
Recurrent Miscarriages
Abnormal Liver Function
Psoriasis
Positive ANA blood Test (which has since been negative)
Depression
Anxiety
Tiny cyst on one ovary
Hiatus Hernia
IBS

Other symptoms also include
Hair falling out and what looks like bald patches
Strange rashes and new allergies eg playdough, baby wipes, medical tape...
All over muscle/joint/bone pain
Random Swelling
Unexplained bruising
Excessive Sweating
Constant Temperature Fluctuations
Extreme Fatigue
Constant Gagging
Nausea
Blood in my vomit
Severe daily diarrhoea
Throat seizing up
Difficulty swallowing Medication
Severe stabbing stomach and bowel pain
Symphysis Pubis Dysfunction when I was pregnant with daughter
Chronic hip pain
Electrical pulse pains up my spine
Sciatica
Regular Thrush Infections
Severe Pain during sex
Chest pains
Pseudo-Dementia Fibro Fog could explain this)
Yellowing skin on eyelids
Constant redness across my cheeks looks bit like rosacea
Weight Loss
Abdominal Swelling
Fast Pulse
Stabbing pain in eyeballs
Itchy eyes
Generally feeling unwell and run down
Also when I am pregnant and my waters break I go into full blown constant labour (when this happened with my daughter I was in constant labour but wouldn't dilate past 3 Cm's, when I had miscarriage at 16 weeks I gave birth about 30 Min's after waters breaking maybe not even that)
When Pregnant with my daughter also had dilated Kidney

This is all I can think of at the moment there is probably more.

To me I think they may be missing something, surely there is something that covers everything because a lot of these thing only became problematic after the trigger point which was in June 2010 when I had miscarriage at 16 weeks, also exactly one week after miscarriage I had blackout/seizure and when I came round I had wet myself yet this was never investigated as a lot of the things haven't been.

Any suggestions?