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Tuesday 3 April 2012

Some Interesting Reading

Roanoke Chiropractor Thoughts on Fibromyalgia

http://www.chiropractorroanokeva.com/roanoke-chiropractor-thoughts-on-fibromyalgia/

Had a quick scan through - although I will need to have a proper read at it and take some notes when my head isn't so sore.  Just took my painkillers (although they don't even touch the pain never mind kill it) Co-Codamol 30/500.  Sometimes I think my doctor's are seriously having a joke.  Will take my night time meds in a bit and relax or at least try to with a coffee and some "herbal medicine" although that to only dulls the pain a tiny bit.  But what can I do when my so called Dr's refuse to understand the pain - a lot of which is from my back which as yet they have not treated even though they have seen I have degenerative spinal wear & tear and a prolapsed disk, at least I have physio for that in about a fortnight.  But seems to be if I didn't have fibro they might have actually treated that, but then even the diagnosis of fibromyalgia seems like a cop-out, considering the diagnosis is fibro plus a list of other things.  In my opinion they should be looking at all the separate illnesses and symptoms and piecing them together like a jigsaw and trying to figure out what causes all these things considering they all started from the trigger point.  Every day new symptoms appear and so far there have been so many and with my mind being all foggy it is often hard to remember them all when I see my GP or I feel there is too many things and not enough time.  Most of the time I feel I am having to repeat myself with them over and over as they still aren't really treating the pain, which fair enough I know it is hard for GPs but they are not the ones struggling daily with the pain.  Each time I go to see another specialist at the hospital I feel as if there is something in my notes I am not being told.  Take for example yesterday when I was at the haematologist and he said "The very complicated and complex diagnosis the rheumatologist has gave you" and silly me didn't ask what in fact that diagnosis was - would he say that if it was simply fibromyalgia? I'm not so sure.  The when talking about blood results he said "But we expect some abnormal results in someone like you / with your diagnosis".  Can't remember exact words but along those lines, think I may need to buy a Dictaphone and take it with me to appointments.  Again to me that doesn't seem true to someone with Fibro - I'm not sure I am new to this but have read up quite a lot on it and while true a lot of the symptoms are covered in FMS, a lot of them aren't.  I also have Hypermobility forgot to mention that at the start.  So what connects all these things or am I just unlucky enough to have got a handful of separate illnesses at the one time.  I will need to list them all down and see if anyone else with fibro has all them, but not just now my brain hurts to much.  I am baffled and confused and feel I am fighting a losing battle.

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